the ETC is a rehabilitation first "ethics" is an approach to the child, and is not a method, understood as a set of maneuvers . What follows is my vision rehabilitation: from all this is necessarily resulted in the choice Cognitive Therapeutic Exercise.
rehabilitation therapist and being
I often wonder why I chose to be a therapist. I could have chosen many other ways, but according to my character, and go to the next meeting in yet another way, for a variety of reasons and randomness, I find myself to be who I am today, and look specifically for the rehabilitation of neurological disorders of children.
I have encountered over the years and continue to meet every day children with various diseases, ages ranging from newborn to preteen, and at all levels of severity, the families of all types, from single parent with child, the extended family, and all levels of socio-cultural. These families have something in common, that is life with disability, and was also to meet with these people who made me the therapist I am today.
When they come to me, some, se non quasi tutti, dei genitori che incontro sono già passati per molte delle tappe di ricerca di soluzioni risolutive ; dalla diagnosi buttata lì senza spiegazioni, senza aiuto, senza sostegno; passando per l'incontro con i medici e terapisti del servizio sanitario nazionale; fino ai tentativi più disparati di fare qualcosa che aggiusti il problema, comprese terapie da 20 ore al giorno e viaggi oltreoceano dove viene proposto null'altro che le stesse identiche cose che si fanno qui, ma fatte per lo più molto peggio (ma lì sono a pagamento, quindi necessariamente devono essere meglio).
These families are often destroyed by medicalization.
From diagnosis, sometimes difficult and transmitted in a very careful and respectful of the feelings of the family, to the attempts, successful or (more often) not, readjust where it is broken, these children are dehumanized, deprived of their complexity, reduced to repair machines, where each specialist off his piece, treat it and hangs up as if it were simply a recovery and guaranteed quality.
Children disintegrated, deprived of unity of their people , of \u200b\u200btheir ability, albeit different, although the first approach is not immediately understandable, thought, and relegated to be mere executors of orders, gestures, postures, repetitive movements, where attempts to rise to a 'point of view that sees them as a simple set of reflections, in an effort to communicate the sacred discomfort, are not only completely ignored but dismissed with a is lazy ... has no will, blaming the patient (who often can not understand the insult, and therefore can not answer) , even if the child is 13 months, anche se ha una grave patologia, anche se di un bambino sano che non ha voglia di fare qualcosa che gli crea dolore, disagio, o anche solo noia, nessuno si sognerebbe mai di mettere in discussione la voglia, per di più dandogliene la colpa. Semmai (giustamente) si dà la colpa al docente che non è capace; in riabilitazione accade assolutamente il contrario.
In quest'ottica si cerca sempre di più , dove il “di più” è sempre di tipo quantitativo (più ore, più terapia, più terapie) e praticamente mai qualitativo, nonostante gli recent studies of neuroscience confirms how experience alters the abnormal disruption in neuronal synapses creating and highlighting maladaptive behaviors (which does not occur in the absence of experience in a nutshell ... which means that a poor rehabilitation is much worse than no rehabilitation).
These parents feel guilty because lady, the blame is his who does not do this this and this is why the child does not improve : an intellectually dishonest stance, because those who did not acknowledge guilt, a own responsibility, or more often not able or not being able to help patients, although the therapeutic role that should be filled.
These parents are not helped in able to look at their children as children with cognitive needs, as these children have always been presented as only one can not do that, the score obtained in the scale of X, Y disease, what can not, what will not.
Increasingly rehabilitation reduces to medical procedures such than with rehabilitative aims and purposes that are not shared with the child himself (otherwise why would we support a child in therapy, cries the bloody mobilization is normal ?) where therapy seems to serve not just the child in order to enable a better understanding of the world and themselves, a greater awareness and better ability to report (and thus, to make a happier person ), but rather to occupy somehow move to do just as long as you move!, where for years the same movement is repeated in the same way, the same for everyone, and so on for decades.
The difference between do the therapist and be therapist is all there: the encounter with the child, enter his world on its own level, knowing that a meeting be unique, being in front of someone's unique, with its difficulties but also its ability to turn into mediation skills with the help of therapy, so that therapy bring out the better that these children may be working on what Vygotsky called area of \u200b\u200bpotential development, and not the worst, with weeping, shouting, screaming, apathy.
E 'need to establish clear objectives, that all may assess in everyday life (the target makes the extension of the elbow flexion is useless, if the flexion-extension is not used to make a caress to her mother, take a game, go to touch a cat to hear about hairy), and how you plan to achieve them and in what time.
Non si può fare i terapisti. Bisogna esserlo , e per essere terapisti occorre costruire un'interazione assolutamente specifica, ed esercizi che vanno bene non per la tetraparesi, non per il livello di sviluppo tal dei tali, ma solo ed esclusivamente per Livia, per Michele, per Tiziano, per Flavio. Perché se si vuole curare la persona , e non la malattia, la riabilitazione deve passare dall'essere un problema medico , ad essere un problema etico . Perché dietro ad ogni approccio c'è una visione dell'Uomo: se la visione generale è di stampo meccanicistico, dove la persona non è più persona, ma numero, patologia, assenza di capacità, questo è un problema riguarda tutti, e non solo chi ha avuto in dono dalla sorte un bambino speciale.
Fabiana Rosa
(Pubblicato su " Zeus ", Marzo 2009)
Pagina in costruzione
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